GDOL Portland 2019

GDOL is a free one day event to help patients and caregivers learn more about this rare cancer, find support, and enhance their knowledge base to help them navigate their cancer journey.   8:30 am - 9:00 am – Registration/Sign-In & Light Breakfast 9:00 am – GIST DO It Walk across the Tilikum Crossing Bridge over the Willamette River-https://www.mightycause.com/event/Gistdoitportland19 9:30 am – Registration/Sign-In & Light Breakfast (continued) Meet & Greet 10:00 am – Welcome Diana Nieves - Senior Director, Outreach & Engagement at the LRG Michael Heinrich, MD - Professor of Medicine, Cell and Developmental Biology; Head of the GIST Translational and Clinical Research Programs at OHSU Knight Cancer Institute 10:15 am to 11:00 am – Standard GIST Treatments/Update on Current Management of GIST - Suzanne George, MD – Director of Clinical Research, Center for Sarcoma and Bone Oncology; Senior Physician at Dana-Farber Cancer Institute 11:00 am to 11:45 am – Immunotherapy for Treating GIST Cancers - Arun Singh, MD – Assistant Professor; Director Medicine, Hematologic Oncology, Sarcoma at Ronald Reagan UCLA Medical Center 11:45 am to 12:30 pm – New GIST Treatments/New Agents for GIST (Avapritinib and DCC-2618) - Michael Heinrich, MD - Professor of Medicine and Cell and Developmental Biology; Head of the GIST Translational and Clinical Research Programs at OHSU Knight Cancer Institute 12:30 pm to 1:15 pm - Break for Lunch, Mix & Mingle 1:15 pm to 1:45 pm - How to Find and Participate in a GIST Clinic Trials - Tracy Havnaer, RN, BSN at OHSU Knight Cancer Institute 1:45 pm to 2:30 pm – Update on SDH-deficient GIST Michael Heinrich, MD - Professor of Medicine and Cell and Developmental Biology; Head of the GIST Translational and Clinical Research Programs at OHSU Knight Cancer Institute 2:30 pm to 3:00 pm – THC, CBD and GIST - Speaker TBA 3:00 pm – Question and Answer Session 3:30 pm – Closing 3:30 pm to 5:30 pm – Social Gathering on Rooftop Patio   The Life Raft Group has a simple focus: to cure a form of cancer — GIST — and to help those living with it until then. To do this, the Life Raft Group focuses on three key areas: research, patient support & education, and advocacy, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs, the worldwide community of GIST advocates and the global health and research environment.